Wonderful ordinary dream

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Blank. I sit before the screen, blank. My thoughts are with people I care about, people I love, people who are facing an illness that everyone fears: cancer. Cancer is so much more prevalent than it once was, it seems. Or maybe cancer existed in greater numbers than was spoken of, once; there was a time when cancer marked a person with shame, though that makes no sense to me. Cancer used to be like Voldemort: a word too terrible to speak. People hid it, kept it secret. I don’t think that’s true anymore. Now, everyone knows someone who has cancer. Most of us probably have close friends or family whose lives have been changed by cancer. It’s a presence in our landscape, it’s almost a place. It has its own geography, its own language, its own time zone.

In my own life, cancer has visited people I love, people very close to me. One of my brothers survived childhood cancer. You’d never know it, now. But I’m sure he knows it. We know it. When he turned forty, it seemed like a dream, a wonderful ordinary dream. I thought about how many other children, treated in his era, were not so fortunate. I thought of the loss to their sisters and brothers and mothers and fathers and grandparents, aunts, uncles, cousins, friends.

Cancer opens question marks in a life. The unknown looms. What will happen? How long do I have? What do I need/want to get done here on earth? What’s urgent, what matters, and what’s superficial, what can I cast off? But the question marks are always there, have always been there, we’re just not thinking about them. I want to think about them. Life is precious. This is a statement both banal and cliched; and completely absolutely heartbreakingly true. Life is always precious. It seems all the more precious when we’re made aware of how fragile life is. Tough, but fragile. Because life isn’t ours to hold onto. Life is a gift. I think of this New Yorker story about super-rich tech men who are building bunkers in the American desert, preparing to survive nuclear war or some other human-made disaster, and I think: What arrogance, to imagine that you can control what will happen to you; what a waste of resources, splurged on the self. This is how you want to spend your numbered days? All the money in the world can’t buy you immortality. You are mortal, as we all are, you are made of flesh and blood.

So, what to do? What to do, sitting here, feeling blank, feeling angry, feeling afraid, staring at this screen, knowing most piercingly that life is precious, that today is precious, that this hour is precious? I don’t know, any more than anyone else. It is not only life that is precious, it is time, our measure of life. Time is a luxury. Time passes, and we pass through time. Today, I will bake a birthday cake for a nine-year-old. I’ve already wrapped a few carefully chosen presents for him. I’ve walked him partway to school. We hugged at home, but he did not want a hug when we said goodbye on the sidewalk. Today, I will write for awhile and draw for awhile. Today, I will play on a soccer field with a group of lively eleven and twelve year old girls. Today, I will eat cake and watch an excited boy blow out candles, make a wish, open gifts.

I will wish for presence given to the task at hand, each one in turn. Every minute, poured into the task of love and care, patience, devotion, hope, joy, even grief, even that. Whenever I am discouraged, I take a really deep breath. Whenever I am afraid, I take a really deep breath. Life is precious. Breathe deep. Life is a gift. Breathe deep. Right now, today, this hour, life seems like a wonderful and ordinary dream, for which I give thanks.

xo, Carrie

P.S. I want to add to these reflections after reading two obituaries in the Globe and Mail newspaper today, one about Penelope Reed Doob, a scholar of dance and literature, the other a personal memory about Richard Wagamese, a Canadian-Ojibway writer. Penelope Reed Doob was not only a scholar, but also did medical research, founding a company involved in finding a cure for HIV/AIDS in the late-1980s/early-1990s. “I wanted to save lives,” she is quoted as saying. “However, I eventually wondered what I was keeping people alive for. I thought that dance was one reason why people should enjoy life.” The piece about Richard Wagamese recalls his story about a librarian who helped him when he was homeless. “She opened the world for him. He told us that the librarian taught him to read, see, hear and feel through everything she introduced to him.”

What connects the dots between these thoughts and my reflection, above? To state that life is precious, that it is a gift, is the most obvious of observations. It’s almost too basic. Life must also be worth living—a worth that is felt and experienced. What makes life worth living? For Penelope Reed Doob, it was dance, it was art. For Richard Wagamese, it was also art, music, books, education. For me, it’s play, art, words, creating, sharing, good food, the list goes on and on. There is surviving and there is living. Living should not be a luxury, available only to the privileged or the lucky.

That is all.

You have to be able to stand not knowing
This belongs to you

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